Why Frailty Is Needed, or Living a Meaningful Life with Disability
Keywords:
frailty, fragility, long-term care, interdependence, persons with disabilities, reciprocity, human dignity, social construct, sociology of care, subjectivityAbstract
The article proposes a radical reconceptualization of frailty—a condition traditionally viewed as a manifestation of weakness, decline, and loss of dignity. The authors criticize leading approaches in academic and public discourse that reduce frailty either to medical diagnoses or to moral deficiency, arguing instead for understanding frailty as a socially constructed, existential, and ethical phenomenon. Drawing on qualitative research conducted in 2025 across six regions of Russia—including over 200 interviews with participants in the long-term care system—the study shows that fear of frailty often exceeds fear of death and is closely tied to the perception of oneself as a “burden.” Yet the life narratives of individuals with severe physical limitations, including care recipients with disabilities, reveal an alternative perspective: frailty can serve as the foundation for reciprocal, mutually enriching relationships of care, rather than one-sided “service provision.” The authors identify three key dimensions: (1) interdependence and reciprocity as the basis of care; (2) the social construction of frailty through perception and institutional frameworks; and (3) the isomorphism between frailty and life itself—its fragility, vulnerability, and authenticity. In this light, frailty ceases to be a deficit and instead becomes a meaningful expression of the human condition, strengthening social bonds and affirming human dignity even under conditions of total dependency. This reframing invites not only a rethinking of care practices but also a reimagining of the ethics of engaging with vulnerable members of society, affirming the value of life in all its manifestations—even in profound dependency and fragility. The authors call for a shift from a paradigm of autonomy to a paradigm of encounter, where care is understood as shared presence within a space of mutual recognition.Downloads
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